NEW CHAPTER

Things are going well. So well I'm afraid to think about it too much or talk about it out loud. On the 8Th of April we went with S.to emergency department. She wasn't very unwell, I was just concerned about urine not clearing out after a week of antibiotics and she was off food a bit. Typical UTI symptoms for us so I thought we will just go over to check it and get different meds. While we were there her temperature started to rise...I was very upset and stressed out when I found out that they would be keeping S. in.... We managed to stay out of the ward for over a year, so how is she going to take it now, when she's more mature and understands what is…
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ONE STEP FORWARD – TWO STEPS BACKWARD (separation anxiety)

Last time I wrote in here was just after S.'s cystoscopy . Then she had a UTI. Its been 3,5 months since. What was happening during that time? LOADS One step forward: After full cours of antibiotics, S. UTI cleared out and what's more important- E coli was gone. We were fighting it for a full year and couldnt get rid of it, and somehow just after one week of Keflex it was gone- for last 2,5 months. Its kind of a mystery how - as results that came showed that S. urine sample contained two different types of bacterias and each of them were resistant to oposite antibiotics. Anyway- first time -after 12 months she stayed bacteria free and dry in between catheterizations. And thats our goal at the moment (to…
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Happy, Healthy, New Year

How was your 2017? Ours was very busy. Last night I sat down and thought about last year, about S. and realised how much she has grown up, how many things happened in her life. She left playschool and started primary school, a huge change and challenge to a very bright but shy girl. Not only meeting new kids, adjusting into a new place but also OR I should say- more importantly, meeting and getting used to her SNA. (SNA = Special Needs Assistant, who looks after S.in school, making sure S. is drinking plenty of water, she check few times a day if S. is clean as she is dripping constantly, change her when she needs it, catheterize her, etc.) It took S. 4 months, but she made it.…
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Women’s Mini Marathon

I'm so happy! Couple days ago I register for Women's Mini Marathon and today I got my sponsor cards and T-shirt :) It means its happening! I'll be collecting money for our beloved Temple Street Children's University Hospital. This year they are hoping to raise 100 000 euros to buy equipment such a Anastetic Machines used to support the administration of anasthesia during theatre procedures. I hope I can help with it. (more…)
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