Happy 11th birthday S.

Good morning!Today my wonderful girl turned 11. For last couple of years I haven’t think of the day of her arrival. It’s too emotional and traumatic. From previous posts you know it was chaotic and sudden and I’m far to say it was the most wonderful day of my life. If anything, it was the most scary and confusing.But today I did get back to it, while holding my big girl in my arms, and I had a good cry.S. was worried and said it’s her birthday and she doesn’t want anyone to be sad and have a sad tears. But it wasn’t, they were happy tears. I’m so happy to have her in my arms, to witness her growing old, and being able to watch her turning to this…
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La Fheile Padraig Sona Duit – Happy St. Patrick’s Day!

Saint Patrick's Day is a holiday whose homeland is Ireland. It is celebrated in honour of the country's patron - the bishop and apostle of Ireland, St. Patrick.Few countries outside of Ireland can enjoy a patron whose commemoration manifests itself as a day off and the tradition of celebrating throughout the weekend. The grand celebrations are dominated by the green colour and the symbol of the three-leaf clover (shamrock), parades are organized in cities (there are local parades even in larger districts) and carefree fun continues in pubs. The history of these celebrations dates back to the seventeenth century. Over time, this holiday has spread to many places around the world, not only in English-speaking countries, but also in Japan and Poland, where this day is marked by beer and…
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A year after surgery

Hi everyoneNot sure if anyone is still coming over here to check our news. I don't blame youif you aren’t. I have been quiet for a year!Last post I wrote was two days before S. surgery. If you are a parent of a child you can imagine, or you already know, how stressful this is. Not just the day of itbut the whole process of preparing the child for it to trying to keep yourselfcalm when you want to cry. So the surgery happened and it went well. A small cyst was removed from S. bladderand the results of the biopsy came back in two (full of nerves) weeks. Itwasn't anything dangerous.It was a super stressful time so as soon as it was over, I just wanted to forgetabout.. not write…
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Circle of friends

Support system Today I got a phone call from hospital that S. procedure will be happening in 2 days. Very sudden and unexpected. To be exact it was expected last week – and we were prepared for it - but was cancelled due to cyber attack for ransom on National health system. I did not expect to be rescheduled so fast. I thought it wouldn’t happen for weeks. My first though was I have to tell S. and she won’t take it well. I told her a week before planned date and when it didn’t happen she was upset, as she was already anxious but also happy it’s not happening. Second thought was – I have to inform everyone else – S. school : teacher and principal and SNA and…
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You are perfect the way you are

Last week S. told me she was too upset in school as one of the girls at her table was mean to her. She was making fun of her and said in the front of the whole class that S. didn’t do her homework because she goes to therapy because of her special needs. I was SHOCKED. I took a deep breath and asked how this girl knows S. goes to play therapy every Wednesday. She admitted she told the girls. I was slightly surprised but I didn’t want to carry on about that. Why? because I think it’s great she feels comfortable talking about what’s happening in her life, it looks like she is OK with it ? Even though I’m not sure she realises that not all people…
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Finding new kind of normal

Full year of living with pandemic. Do you remember where you were and what were you doing the day the first lockdown was announced? I do. I was in the children’s hospital. Waiting for my child to come back from theatre. I panicked as I realized I don’t have any milk at home and not sure if any bread… The Taoiseach announced the schools are being closed, shops and pretty much all the country closed. All I could think of – I have enough catheters and medications for S. for next 3 months, but what’s if it’s not enough? Not long later I found out that there is shortage of syringes and other bits in pharmacies. But mostly I remember the feeling of fear – not knowing what’s ahead of us, Is…
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2021 Please be nicer to us.

It been a while since I post anything here. Last post was on the end of August. It’s been a busy. S. is relatively well. It is never going to be perfect and it’s OK we are happy if she is steady. Last UTI she had in march this year so it is great result. I remember times when she suffer from Urinary Tract Infections nearly every month with small breaks. So nearly a year of infections free is amazing results. I’m grateful for it. In case your child is struggling with it – what works for us, it might not work for you. I’m not a doctor, and this blog is my personal thoughts, for medical advice please talk to your doctor. What keeps S. away from UTI’s and…
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Needles phobia / Belonephobia – a fear of needles

It's been a while since I wrote about S. health so it’s time for an update. Just a week before her birthday we went for bladder and kidneys ultrasound (like we do every year) and the DMSA test. I wrote about it while back. It's actually funny – I couldn't remember what exactly that test is about so I looked it up on my blog to remind myself :) https://www.cloaca.eu/?s=dmsa (DMSA renal scan : a dimercaptosuccinic acid (DMSA) scan – where a child is injected with a slightly radioactive substance called DMSA that shows up on a special device called a gamma camera. This takes pictures of the child's kidneys; after the scan, the DMSA will pass harmlessly out of the child's body, in their urine.) On the last ultrasound…
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Happy 8th birthday to my super hero girl!

Every year I post a birthday post here.  This year just as every 8th of the 8th, from the moment I woke up I thought of this day 8 years ago (S. love the fact she turned 8 on the 8/8 :D) But this year I realized something else. For the last few years I'm going over the board with preparations for the day. The deep cleaning of the house (I don't even do it so hard before Christmas – like most of my friends do), the party decorations (to impress my kids, to see that wide open mouth of S. with big silent WOW in her eyes), the big bake off like we would have an army of friends visiting us (even though its a hand full of friends this year),…
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2020…

On the first of January I wrote in my diary "2020 is gonna be my year"... How naive was I? There’s half of it gone and as we all know it's definitely a year we will remember. Not for the reasons we originally planned. The virus called Covid 19 also known as coronavirus, is a new illness that can affect your lungs and airways. It started in January 2020 in China. Came over to us at the beginning of the year but first case of coronavirus was confirmed on 29 February 2020. I will never forget the lockdown was announced was announced for this country. The Taoiseach and Minister for Health issued strict guidelines for people to stay at home from midnight on 27 March 2020. “The main rule is to STAY AT…
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